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32ND EUROPEAN ACADEMY OF CHILDHOOD DISABILITY ANNUAL MEETING 2020

 

ONLINE, 25.11.2020 - 28.11.2020

PROGRAM
The list of e-poster will be published soon.

 
16
November
Monday
Live Surgery Webinar
12:00–15:00
The second Transatlantic Live Surgery Webinar on Pro- and Reactive Surgery for Spastic Hip Disease Treatment in Cerebral Palsy Children.


17
November
Tuesday
Virtual Hall 1
 
EACD PREMEETING ORTHOPEDIC WEB-CONFERENCE
10:00–11:45
IC
00265
The use of instrumented gait analysis to aid with surgical decision making in ambulant cerebral palsy
Rory O'Sullivan, Andrea Marron
12:00–17:30
Minisymposium - Spastic Hip Diseases - proactive and reactive treatment
12:00–13:15
00270
From childhood to adulthood with cerebral palsy: CPUP – a multi-professional surveillance programme through the lifespan
Elisabet Rodby-Bousquet, Piotr Michno, Erika Cloodt, Jenny Hedberg, Johanna Pettersson
13:30–15:00
00483
Management of the Hip in Cerebral Palsy - From Evidence to Practice
Unni Narayanan
15:15–16:15
Hip in Adults with Cerebral Palsy
Henry Chambers
16:30–17:30
Hip Salvage Procedures
Marek Jozwiak
17:45–19:30
IC
00273
The application of evidence-based selection criteria for selective dorsal rhizotomy in ambulant cerebral palsy.
Rory O'Sullivan, Aoife Quinn, Jane Leonard


18
November
Wednesday
Virtual Hall 1
 
EACD PREMEETING ORTHOPEDIC WEB-CONFERENCE
11:30–13:00
13:15–15:00
15:15–17:00
MS
00373
Arthrogryposis multiplex congenita - ovecroming skeletal disabilities in chidlren via surgical treatments - the international perspective.
Bart Kowalczyk, Harold J.P. van Bosse MD, Andrea Jester MD, Ruth Lester MD, Anna Kuznik-Buziewicz MD
17:15–19:00


20
November
Friday
Virtual Hall 1
 
POLISH ACADEMY OF CHILDHOOD DISABILITY - PAND-a MEETING
in polish
16:00–16:30
Welcome Ceremony
Anna Nowak
President of PAND-a
Prezes PAND-a

Katarzyna Świeczkowska
Coordinator of PAND-a Symposium
Koordynator Sympozjum PAND-a

Marek Jóźwiak
Chairman of the organizing committee 32nd European AcademyOf Childhood Disability Annual Meeting
Przewodniczący Komitetu Organizacyjnego 32nd European AcademyOf Childhood Disability Annual Meeting

Arnab Seal
President European Academy of Childhood Disability
Prezydent European Academy of Childhood Disability

Introduction
Słowo wstępne
16:30–18:30
The rights of the persons with disabilities.
(The UN Convention on the rights of the persons with disability)

Prawa osób z niepełnosprawnością
(Konwencja ONZ o prawach osób niepełnosprawnych)
Monika Zima-Parjaszewska
18:30–19:00
Support for people with disabilities during the COVID-19 pandemic - PAND's point of view
Wsparcie osób z niepełnosprawnością w pandemii COVID-19 - stanowisko PAND-a
Magdalena Chrościńska-Krawczyk


21
November
Saturday
Virtual Hall 1
 
POLISH ACADEMY OF CHILDHOOD DISABILITY – PAND-a MEETING
in polish
 
PAND-a Symposium
"From Childhood to Adulthood With Disability"
"Od dzieciństwa do dorosłości z niepełnosprawnościami"
10:00–10:30
An adult with disability in the Polish system of social care

Dorosłość osób z niepełnosprawnością w polskim systemie opieki społecznej
Joanna Cwojdzińska
10:45–11:15
Transition from children's to adults health care system: problems and solutions

Aspekty opieki nad pacjentem z chorobą rzadką- przejście z okresu dojrzewania do dorosłości
Maria Libura
11:30–12:00
What shall happen to my grown-up child when I pass away? (a presentation of the project, Support circles building)

Co będzie, kiedy mnie zabraknie, budowanie kręgów wsparcia wokół dorastającej osoby z niepełnosprawnością
Adam Zawisny
12:15–12:45
Sexuality of a person with disability

Edukacja psychoseksualna osób z niepełnosprawnością
Izabela Fornalik
14:00–15:30
Augmentative Alternative Communication – parent as a communication partner, tools and startegies for successful augmentative and alternative communication in the family environment

Komunikacja alternatywna i wspomagająca – rodzic jako partner komunikacyjny. kryteria warunkując skuteczność oddziaływań AAC w środowisku rodzinnym
Panel z udziałem Beaty Batorowicz, Magdaleny Grycman
Prowadzenie - Katarzyna Świeczkowska


22
November
Sunday
Virtual Hall 1
10:00–17:45
POLISH ACADEMY OF CHILDHOOD DISABILITY – PAND-a MEETING
in polish
 
PAND-a Symposium
"A person with disability in the Polish health, social, educational and legal system."
"Osoba z niepełnosprawnością w polskim systemie wsparcia"
10:00–10:30
Functional Developmental Diagnosis and Therapy
Diagnoza i terapia funkcjonalna
Radosław Piotrowicz
10:45–11:15
A child with disability in the Polish legal system
Wsparcie dziecka z niepełnosprawnością w świetle przepisów polskiego prawa
Katarzyna Świeczkowska
11:30–12:00
A student with special educational needs in the Polish educational system
Uczeń ze specjalnymi potrzebami edukacyjnymi w polskim systemie edukacji
Monika Gołubiew
12:15–12:45
A child with disability in the Polish and Norwegian health and social care system (comparison of the systems)
Dziecko w systemie wsparcia, porównanie norweskiego i polskiego systemu wsparcia
Liliana Klimont
12:45–15:45
00021
What Does Early Intervention Look Like in America?
Virginia Paleg
15:45–17:45
"To Be a Parent" Movie Presentation
"Być Rodzicem" Prezentacja filmu
Pros and cons of being a parent of a disabled child
Rodzic dziecka z niepełnosprawnością – bilans strat i zysków

Animation person:
Katarzyna Świeczkowska
A mother of a disabled teenager
Vice-President of the Gdansk Branch of Polish Association for Persons with Intellectual Disability Speakers
Rodzic osoby z niepełnosprawnością, wiceprzewodnicząca Polskiego Stowarzyszenia na rzecz Osób z Niepełnosprawnością Intelektualną Koło w Gdańsku

Katarzyna Łukasiewicz
A mother of a disabled teenager, the President of „Oswoić los” foundation
Rodzic osoby z niepełnosprawnością, Prezes fundacji „Oswoić los”

Anna Kulka-Dolecka
A mother of a disabled teenager, an author of the book „Wyjrzeć przez okno” on what it is like to share your life with a disabled child
Rodzic osoby z niepełnosprawnością, autorka książki „Wyjrzeć przez okno”

Beata Podlasek
A Foster mother of 5 disabled girls, the President of the Pomeranian Foundation for Foster Families-Ania
Mama zastępcza 5 córek, w tym z niepełnosprawnością, Prezes Pomorskiej Fundacji na rzecz rodzicielstwa zastępczego - Ania

Tomasz Grybek
A father of disabled teenager, the President of Bohater Borys Foundation for Persons with Rare Diseases
Rodzic osoby z niepełnosprawnością, Prezes Fundacji Bohatera Borysa na rzecz osób z chorobami rzadkimi


Open chat discussion
Chat dyskusja


23
November
Monday
Virtual Hall 1
 
GPEC
PRACTICIONERS MEETING
The Global Professional Education Committee (GPEC) is a sub-committee of the International Alliance of Academies of Childhood Disability (IAACD) (e.g., IACP).
 
Session I
“Looking forward, looking back: Learning and reflections!”
Chair and Moderator: Arnab Seal
09:30–09:50
The IAACD 5 years on
Hans Forssberg
10:20–10:40
The IAACD Knowledge Hub: where we are now
Jenny Carroll
09:50–10:20
Stories from the GPEC workshops
Arnab Seal
10:40–11:00
Break, virtual exhibition
 
Session II
“IAACD COVID-19 Task Force initiatives”
Chair and Moderator: Bernadette Gillick
11:00–11:30
Listening and Sharing together: Global experience
Alicia Spittle
11:30–12:00
COVID inspired resources
Katarzyna Swieczkowska and Mairead Dempsey
12:00–12:30
Global Data co-ordination
Veronica Schiariti
12:30–13:30
Break,virtual exhibition
 
Session III
“Creating an IAACD Web-based Resource for the World: Structure, content and opportunities.”
Chair and Moderator: Jenny Carroll
13:30–14:00
ICF in practice: Implementing the F-words in context
Peter Rosenbaum, Alice Soper and Rachel Teplicky
14:00–14:30
Building Resilience
Julia ten Hove
14:30–15:00
Life course approach in managing children with chronic disability
Marcia Greenberg
15:00–15:30
Discussion, Thanks and Close
Peter Rosenbaum


24
November
Tuesday
15:00–19:00
FAMILY AND PROFESSIONAL CO-WORKING FORUM
Exploring transition from childhood to adulthood through co-working between families and professionals to enhance practice and participation
Alain Chatelin, Wiliam Sherlaw, Katarzyna Świeczkowska, Anna Andrzejewska, Reidun Jahnsen, Mark Peterson, Elisabet Rodby-Bousquet, Peter Rosenbaum


25
November
Wednesday
 
POSTER SESSION
all time open; discussion only with the chat mode
 
COMORBIDITIES
08:00–09:15
Breakfast MS
00208
Creation of a core outcome set linked to the ICF-CY for children With Congenital TORCH or ZIKV
Infections.
Melissa Gladstone, Verónica Schiariti , Egmar Longo
09:30–09:45
OPENING CEREMONY
Arnab Seal, Marek Jóźwiak
09:45–10:30
Keynote Lecture
Lifespan development with a neurodevelopmental disorder
Bernard Dan
 
10:45–11:30
Keynote Lecture
Cerebral palsy from pediatric neurologist perspective
Sergiusz Jóźwiak
 
11:30–12:15
Keynote Lecture
Opening doors to meaningful life participation
Beata Batorowicz

 
12:30–14:15
IC
00430
Health outcomes, how do we meet medical and rehabilitation needs in adults with cerebral palsy?
Elisabet Rodby-Bousquet, Mark Peterson, Reidun Jahnsen, Jennifer Ryan, Sarah Reedman
14:30–16:00
IC
00449
Triaging “Disruptive Sleep & Wake-Behaviours” for further Assessment in Specialized Clinics: A Clinical
Practice Guideline for Practitioners without Sleep Medicine Training
Osman S. Dr. Ipsiroglu, Gerhard Kloesch, Rosalia Silvestri
16:15–17:00
Keynote Lecture
“A View from Both Sides"
Henry Chambers
 
17:15–18:30


26
November
Thursday
 
POSTER SESSION
all time open; discussion only with the chat mode
 
COMORBIDITIES
08:00–09:15
Breakfast MS
00393
Special interest group (SIG) – Adults with childhood onset disabilities
Elisabet Rodby-Bousquet, Mark Peterson, Reidun Jahnsen, Emma Livingstone-Jacobs, Alain Chatelin
09:30–10:15
Keynotes Lectures
COMORBIDITIES PLENARY SESSIONS
Parents and transition: out of place, or put in the wrong place?
Bryony Beresford
 
10:15–11:00
Keynotes Lectures
NEUROPLASTICITY PLENARY SESSIONS
Neuro-rehabilitation to optimize Neuroplasticity in children with Cerebral Palsy
Rosalyn Boyd

 
11:15–12:15
Keynotes Lectures
Not CP but HSP
Mauricio Delgado
 
12:30–14:00
14:00–15:30
15:30–17:45
Affiliated Society Joint Session - EPNS
18:00–18:45
Keynotes Lectures
COMORBIDITIES PLENARY SESSIONS
Feeding back to feed forward: How do we use lessons from adults’ experiences to impact children and families?
Peter Rosenbaum

 
19:00–21:00
EACD Annual General Meeting